Researchers at the Sanford Stem Cell Institute have taken the fight against rare diseases to the lab, to patients’ bedsides ...
A skin condition tied to delusions is posing a riddle for doctors: What to do when a diagnosis causes offense?
The Independent on MSN
Eddie Vedder’s new Netflix doc raises awareness of rare skin disorder
What is Epidermolysis Bullosa? Eddie Vedder’s new Netflix documentary raises awareness of heartbreaking skin condition - The Pearl Jam singer co-founded the EB Research Partnership to help treat and c ...
12don MSN
Netflix is casting a light on a rare disease. Pearl Jam’s frontman is raising cash to cure it.
An organization started by Pearl Jam frontman Eddie Vedder and his wife, Jill, is using venture philanthropy to finance a ...
A groundbreaking topical gene therapy for 'butterfly skin disease' has transformed rare disease treatment. Suma Krishnan's ...
Easton Fridel wants to thank you for following his journey with a rare skin diseaseWhen he was born, he captivated Central New Yorkers because of his dire medic ...
‘Like being burned from the inside out’: Utah woman describes rare skin disease caused by medication
SALT LAKE CITY (ABC4) — A Utah woman is sharing her story after she survived an incredibly rare and often fatal skin disorder caused by an allergic reaction to antibiotics. Brandi Nicole Pond, who ...
BREWER, Maine — A community of friends and strangers is rallying behind a Brewer family after their baby daughter, Elliana Campbell, died from a rare and incurable skin disease called Epidermolysis ...
Genetic ancestry may play a key role in how acral melanoma, a rare and aggressive type of skin cancer, develops and behaves, ...
AYVAKIT ® (avapritinib) is a prescription medicine used to treat adults with indolent systemic mastocytosis (ISM). AYVAKIT is ...
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