My daughter had MERRF Syndrome. Chances are, you've never heard of MERRF Syndrome. I hadn't either before Dalia was diagnosed at age five. What I learned the day my daughter was diagnosed is that ...
When my husband and I adopted our daughter Dalia from Guatemala, nearly 18 years ago when she was six months old, there was so much I didn’t know. I didn’t know how to get her to sleep when I was ...
Add Yahoo as a preferred source to see more of our stories on Google. If you’re not a rare disease specialist, or among the 2 in 1,000,000 people afflicted with MERRF syndrome, I’m guessing you’ve ...
Mitochondrial diseases are clinically and genetically a very heterogeneous disorder group. Some mitochondrial disorders only affect a single organ, such as the eye in Leber hereditary optic neuropathy ...
Estrella Salazar, a 17-year-old science whizz from a working-class town near Mexico City, was inspired by her sister to develop an app to help deaf and hard-of-hearing Mexicans communicate more easily ...
"I hated every single thing about this insidious disease ... I would have given anything ― my home, my limbs, my life ― to banish it. But its tentacles were too strong." The author with baby Dalia.
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